I am so proud to have been a part of this wonderful charity event for Phoenix Children’s Hospital and so thankful they interviewed me and let me “plug” CDKL5.
Watch and see how cute the kids are all in the fashion show!
A couple days left, keep voting!!! Lily had 2 large tonic clonic seizures today amongst all the small seizures she has. We had to add yet another med to her huge daily regime of medications. Please vote, let’s cure this stupid disorder! Don’t forget to comment that you voted!
Ivanhoe Couture Holiday Miracle from Missionary Films on Vimeo.
Calm Amongst the Chaos 
I voted each of the three ways, hope it helps. Love Phoenix Children's Lily looked lovely in the video.
I'm voting too!!